Making the Most of Now
Making the Most of Now
Latest Episodes
Pushing the Boundaries of MMN Research - Dr Nicolas Dubuisson
Conversation with Dr Nicolas Dubuisson (University of Oxford) about his cutting edge research into the cause of Multifocal Motor Neuropathy and his hopes to also conduct research that enables a biomarker to be found that helps better identify w...
Miles Washburn - Gearing up for Miles for GBS
In this episode I catch up with Mile Washburn who i first talked to earlier this year ahead of his epic "Miles for GBS" Challenge on 24 August. Miles was diagnosed with Guillain Barre Syndrome (GBS) in 2025 and after a short period ...
Nicole Tait - The Nuts and Bolts of Rare Disease - IVIG and SCIG
Special episode exploring our experiences with the two different ways that immunoglobulin treatment is delivered. As patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Multifocal Motor Neuropathy, Nicole and I both rely ...
The Road to LA28 - Paralympics Series with Ben Watson - #1 - Introduction & the year so far
What does it take to get to the Paralympics? What does it take to win a medal? Those are the questions we hope to answer over the next couple of years in our Road to LA28 series with British Paralympian Ben Watson.In the firs...
Rob Long - Uplifting Athletes and the Rare Disease Community
Remarkable, inspirational, humbling are just a few of the words that can be used to describe Rob Longs journey from the verge of the NFL draft to his role as CEO of Uplifting Athletes via an 18 month battle with a rare form of brain cancer…...